paroxysmal nocturnal hemoglobinuria (PNH) | Aplastic Anemia & MDS International Foundation

paroxysmal nocturnal hemoglobinuria (PNH)

Nikolai Podoltsev, MD, PhD

Podoltsev, Nikolai
Associate Director of the Hematology/Oncology Fellowship Program
Smilow Cancer Hospital at Yale

Dr. Podoltsev practice is focused on myeloid neoplasms including acute myelogenous leukemias (AML), myelodisplastic syndromes (MDS), myeloproliferative neoplasms (MPNs) like polycythemia vera (PV), essential thrombocythemia (ET), myelofibrosis (MF), chronic myelogenous leukemia (CML) among others. He is providing care for patients with

2020 National Patient & Family Conference (virtual)

AAMDSIF is hosting the 2020 National Patient & Family Conference ONLINE over three days, July 17 - 19, 2020. The Conference will feature three days of educational workshops, interesting speakers and support groups for patients with

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Event Date: 
Fri, 07/17/2020 to Sun, 07/19/2020

Study to Assess Safety, Efficacy, Pharmacokinetics, and Pharmacodynamics of RO7112689 in Healthy Volunteers and Participants With Paroxysmal Nocturnal Hemoglobinuria

This is a Phase I/II, first-in-human study consisting of four sequential parts and an open-label extension (OLE). The safety, tolerability, pharmacokinetics (PK), and pharmacodynamics (PD) of single doses of RO7112689 will be evaluated in healthy volunteers (HV) during part 1. The safety, tolerability, PK and PD of multiple doses of RO7112689 will be evaluated in participants with

2020 Patient & Family Virtual Conference

About

Due to the coronavirus (COVID-19) pandemic, AAMDSIF made the decision to move our conferences online in order to protect the health of our patients, families, caregivers and faculty.

We would like to acknowledge the support of our many generous patients, families and caregivers as well as our corporate partners including Celgene, Alexion, Novartis, Genentech, Jazz Pharmaceuticals, Apellis and Acceleron.

Event Date: 
Sat, 04/25/2020
Conference Event Type: 

National Conference 2020 Virtual March for Marrow

We've gone VIRTUAL!
In light of the spread of the Coronavirus (COVID-19) and with the health and well-being of our patients, family members, friends and faculty as our top priority, AAMDSIF has decided to hold our March for Marrow as a VIRTUAL WALK! 

Event Date: 
Sat, 07/18/2020
Community Event Type: 

“Everything is going to be okay:” Jocelyn’s Story of Aplastic Anemia, PNH, and Survivorship

Person's Name: 
Jocelyn Boyer

Before diagnosis, Jocelyn’s life was normal, predictable. She was thriving her senior year in college, studying Public Relations. In 2008, she was working, volunteering, attending classes---all the normal activities for a 20-year-old. 

But one day that changed. Extreme fatigue set in, making it difficult to walk a single flight of stairs. At first, she dismissed the fatigue to her rigorous schedule. 

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